About this role
Job summary
As the Data Manager and Analyst for Haemoglobinopathy, you will lead the management, quality, and development of specialist patient data systems, ensuring accurate and timely information supports outstanding patient care, national reporting, and service improvement. Working closely with clinical teams and national partners, you'll drive data quality, oversee National Haemoglobinopathy Registry submissions, support digital system implementation, and provide key performance insights that inform decision-making and shape future services. This is an excellent opportunity for a data professional who enjoys combining analytical expertise, system management, and healthcare impact in a highly specialised and rewarding role.
Main duties of the job
The Data Manager and Analyst for Haemoglobinopathy is responsible for the operational management, development, quality assurance and use of local and national haemoglobinopathy data systems.
The post holder ensures that accurate, complete and timely patient data is available to support safe clinical care, national reporting, governance, service planning and decision-making.
The post holder contributes to the safe implementation and ongoing use of digital systems through system administration, testing, data-quality assurance, clinical-safety support, business-continuity planning, and user training and supplier liaison. They are responsible for the Trust's requirements for the National Haemoglobinopathy Registry data submissions as well as ensuring Key Performance Indicator data is available for reporting purposes, such as SSQD and annual reports.
About us
Our new strategy, developed with the support and feedback of colleagues, patients, and partners, is our compass for the next seven years (2023-2030).
We have four primary goals
- high-quality care for all,
- being a great place to work,
- partnerships for impact, and
- research and education excellence
And we will embed health equality in all we do - taking active steps to reduce the avoidable differences in healthcare that some people face, working in partnership with communities.
Our strategy is underpinned by new values and we will work to ensure they are an everyday reality for all:
- we are compassionate,
- we are proud,
- we are inclusive, and
- we are one team
This is an exciting moment as we look to the future with clarity on what we already do well and where we need to focus our energies to make an even bigger difference for the people we serve.
About the University Hospitals of Leicester NHS Trust:
https://www.uhleicester.nhs.uk
Job description
Job responsibilities
Summary: Service Delivery and Development
The Data Manager and Analyst for Haemoglobinopathy provides operational leadership for haemoglobinopathy data systems, acting as the main system administrator, super-user, and specialist point of contact for the MDSAS National Haemoglobinopathy Registry. The role is responsible for maintaining high-quality local and national datasets, ensuring accurate, complete, and timely collection of patient, diagnosis, treatment, activity, and outcome information to support patient care, service delivery, and national reporting requirements.
Key responsibilities include registering eligible patients, maintaining patient alerts, leading data-quality assurance activities, investigating and resolving data discrepancies, and driving continuous improvements in data accuracy, completeness, and timeliness. The post holder develops and manages databases, datasets, dashboards, reports, and data visualisations to support multidisciplinary team meetings, clinical governance, service monitoring, operational planning, and decision-making.
The role produces regular and ad hoc reports, analyses complex information, and presents findings in a clear and meaningful way to highlight trends, risks, opportunities, and areas for service improvement. It also coordinates and validates submissions to the National Haemoglobinopathy Registry, Specialised Services Quality Dashboards (SSQD), NHS England specialised services collections, and other national reporting systems, ensuring compliance with reporting requirements and deadlines.
In addition, the post holder supports clinical audits, service evaluations, business cases, commissioner requests, external audits, and Freedom of Information responses by providing validated data and intelligence in line with information governance standards. They hold overall responsibility for annual review submissions to the National Haemoglobinopathy Registry, support data management activities across the regional network, and provide leadership and guidance to staff responsible for haemoglobinopathy data management within the East Midlands Sickle Cell and Thalassaemia Network.
KEY WORKING RELATIONSHIPS
Internal
UHL and network consultant haematologists
Lead and specialist haemoglobinopathy nurses
Psychology and wider multidisciplinary team
Service Managers, General Manager and clinical management
Digital Services, Information Governance and Clinical Safety teams
Outcomes, Effectiveness, Audit and Quality teams
Service users
External
MDSAS and National Haemoglobinopathy Registry
West Midlands Thalassaemia Network
NHS England and specialised services reporting teams
Other haemoglobinopathy centres and regional MDT partners
Relevant external auditors, commissioners and stakeholders
Person Specification
Commitment to Trust Values and Behaviours
Essential
- Must be able to demonstrate behaviours consistent with the Trust values and a commitment to compassionate, inclusive and respectful working.
Training and Qualifications
Essential
- Relevant Level 4 qualification in data analysis, information management or a related discipline, or equivalent demonstrable experience.
- Evidence of continuing professional development in data, analytics or digital systems.
Desirable
- Further relevant qualification in information management, analytics, digital health or improvement.
Experience
Essential
- Experience of managing, maintaining and validating complex patient-level or healthcare data.
- Experience of reconciling information across multiple clinical or administrative systems
- Experience of producing routine and ad hoc analysis, data models, dashboards, visualisations and written reports.
- Experience of supporting national submissions, audit, quality metrics or regulatory reporting
- Experience of supporting specialist -system administration, user acceptance testing, issue management, system implementation or digital change
- Experience of supporting data quality, validation, benchmarking and performance monitoring using local and national healthcare datasets
Desirable
- Experience within haemoglobinopathy/haematology, specialised services or another complex clinical service.
- Experience of working with national healthcare registries, specialised commissioning datasets, specialised services or national surveillance programmes.
Communication and relationship skills
Essential
- Excellent written, verbal, presentation and relationship - building skills.
- Able to explain complex information clearly to clinical and non -clinical audiences and work effectively across multi organisational boundaries
Desirable
- Experience providing system or process training to colleagues.
Analytical and Judgement skills
Essential
- Strong numeracy and analytical capability. Able to identify anomalies, assess evidence, reach defensible conclusions and escalate material risks or uncertainty.
Desirable
- Knowledge of quality-improvement methods.
Technical Skills
Essential
- Advanced Excel skills and practical experience of Power BI or equivalent business intelligence software.
- Ability to extract, transform, cleanse, link, model, validate and interpret structured data.
- Experience of developing and maintaining datasets, data models, dashboards or recurring reporting solutions
- Experience of database or specialist-system administration, user access support, testing, troubleshooting and issue investigation
- Understanding of data visualisation principles, performance reporting and business intelligence techniques.
- Experience of working with complex datasets to develop meaningful analytical outputs and management information.
Desirable
- Experience of digital-system migration, user acceptance testing, defect management or clinicalsafety documentation.
- Experience of SQL, database-query tools or equivalent techniques used for data extraction, transformation and analysis.
Governance and Information Management
Essential
- Understanding of confidentiality, data protection, records management, secure information handling, audit trails, data provenance and version control
- Experience of developing or reviewing SOPs, guidelines, user instructions, training materials or controlled process documentation.
- Ability to maintain accurate supporting evidence for reports, submissions, governance decisions and assurance activity
Desirable
- Experience supporting formal governance approval processes, clinical risk documentation or business-continuity arrangements.
Planning and organisation skills
Essential
- Organised and methodical approach. Ability to plan and prioritise a varied workload, meet recurring and ad hoc deadlines, coordinate multiple stakeholders and maintain accurate, auditable records
Desirable
- Experience of coordinating MDTs, referrals or comparable governance processes.
Equality and Diversity
Essential
- Able to demonstrate a commitment to and understanding of the importance of treating all individuals with dignity and respect appropriate to their individual needs.
- All staff are expected to engage in compassionate and inclusive leadership in the provision of high quality care and interactions with others
Disclosure and Barring Service Check
This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Certificate of Sponsorship
Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
Employer details
Employer name
University Hospitals of Leicester NHS Trust
Address
Leicester Royal Infirmary
Infirmary Square
Leicester
LE1 5WW
United Kingdom
Employer's website
https://www.jobsatleicestershospitals.nhs.uk/ (Opens in a new tab)