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Regional Care Adviser - Neuromuscular Disease @ The Newcastle upon Tyne Hospitals NHS Foundation Trust

317 07 Northern Genetics Service, NE1 3BZOnsiteFull-timePosted 6 days ago

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About this role

Job summary

Are you passionate about patient and family care? An exciting opportunity is available to join the Highly Specialised Neuromuscular Team based at the International Centre for Life as a Regional Care Advisor. This is an established service with close working links to the John Walton Muscular Dystrophy Research Centre delivering care to patients and their families with complex care needs across the Region.

You'll be part of an ambitious, innovative and passionate multi-disciplinary clinical team balancing medical management with a social model of disability management, identifying needs and providing guidance as early as possible to enable best outcomes, support and care pathways for our patients.

As a Regional Care Advisor you will be an Allied Health Care Professional, or Nurse Registered with the appropriate body, skilled and experienced in working with patients with complex health conditions, initiating evidence-based practice & developing care guidelines to address the health and social care needs of patients and their families.

Interview Date Wednesday 03 June 2026 37 Hours 30 Minutes/Week You will be redirected to Trac to apply for the vacancy. Please expand the job details section and read all of the information before applying for the vacancy. NO AGENCIES PLEASE

Main duties of the job

Work as an autonomous practitioner delivering specialist expertise and advice to families and individuals living with neuromuscular conditions on options available to them Lead in the care and education of patients and carers about living with a neuromuscular condition Act as an advocate for families and individuals in their interactions with other professional staff and services Act as an educational resource for other agencies in the region involved in delivery of care Work within the multi-disciplinary Muscle Team in developing and delivering care pathways for individuals/families with neuromuscular conditions

About us

As a flexible working friendly organisation, we want to be sure that you can work in a way that is best for us and for our patients, and for you. Speak to us about how we might be able to accommodate a flexible working arrangement. If it works for the service, we will do our best to make it work for you.

With around 2 million contacts with patients every year, we deliver care from:

Royal Victoria Infirmary (RVI) Freeman Hospital Newcastle Dental Hospital Cramlington Manor Walks Urgent treatment centres Newcastle Fertility Centre Northern Centre for Cancer Care, North Cumbria Northern Genetics Service These include a range of flagship services which deliver cutting-edge care (supported by state-of-the-art diagnostic services in both radiology and pathology) and are a catalyst for innovation to support pioneering clinical practice in the NHS.

We also have offices at Regent Point in Gosforth and community sites.

Please see attached information on what Staff Benefits we have to offer at our Trust under 'Documents to download' or 'Supporting documents'.

For further information on The Newcastle upon Tyne Hospitals NHS Foundation Trust please visit: Careers | Newcastle Hospitals | NHS | Newcastle Hospitals and Newcastle Hospitals NHS Foundation Trust

Job description Job responsibilities

Advise families and individuals regarding the living options available to them, balancing medical management with a social model of disability management Lead in care and education of patients and carers Act as an advocate for families and individuals in their interactions with other professional staff and services Exercise high levels of judgement, discretion and decision-making in the clinical care of children, young people and adults with neuromuscular conditions within a defined geographical area Work as an autonomous practitioner delivering specialist expertise and advice Act as a highly specialist/educational resource for all other agencies in the region involved in delivery of care Contribute to the development of the multi-disciplinary team objectives and care pathways for the Muscle Team To contribute to local clinical networks both regional and national, and speciality specific groups working in partnership with other key professionals To identify gaps in service provision and implement changes to improve service delivery Promote client equality, maintaining privacy and dignity, promoting individual diversity and rights To identify local, demographic, cultural and environmental factors that influences the health and quality of life for this client group To ensure all patient records are maintained in line with Trust policy

Person Specification

Qualifications & Education Essential

Allied Health Care Professional (e.g. Occupational Therapist or Physiotherapist) or Nurse registered with the appropriate professional body Evidence of continuing professional development and the development of others

Knowledge & Experience Essential

Significant experience to MSc equivalent level of working with patients with complex health conditions initiating evidence-based practice and develop care guidelines Working knowledge of the psychosocial impacts of complex health and/or neurodevelopmental conditions Working knowledge of support available to include health and social care, Education, Health and Care Plans (EHCPs)

Skills & Abilities Essential

Ability to work across health and community settings, with a variety of statutory and non-statutory service providers Ability to collaborate in a multidisciplinary team to advise and guide other professionals based on known expertise whilst also taking on board other contributions Ability to act as a catalyst for change, challenging professional and organisational boundaries, generating alternative solutions which best meet the needs of the client group and their families/carers Exercise high levels of judgement, discretion and decision-making in the clinical care of children, young people and/or adults Ability to manage safeguarding issues effectively Ability to demonstrate tact, diplomacy and empathy with colleagues, patients and relatives Strong time management skills with the ability to prioritise effectively Excellent record keeping and report writing in line with Trust procedures and Professional Code of Practice

Disclosure and Barring Service Check This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Certificate of Sponsorship Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).

From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).

UK Registration

Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).

Employer details Employer name The Newcastle upon Tyne Hospitals NHS Foundation Trust

Address Clinical Genetics/Muscle Team

317 07 Northern Genetics Service

NE1 3BZ

Employer's website https://careers.nuth.nhs.uk/why-us (Opens in a new tab)

Skills

Foundation TrustNHSHealthcarePermanent

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