About this role
Job summary
The post holder will act as the clinical expert and professional resource for children and young people with Sickle Cell Disease and Thalassaemia, their families and carers, and the multidisciplinary team involved in their care.
To provide expert clinical leadership and specialist nursing care for children and young people with haemoglobinopathies, delivering high-quality, evidence-based care whilst leading service development, education, research and quality improvement across the patient pathway.
The successful candidate will be responsible for leading, managing, and developing a specialist haemoglobinopathy service, ensuring the delivery of high-quality, evidence-based, clinically effective care and an excellent patient and family experience.
To provide strategic direction, clinical leadership, and expert guidance to support the continuous development of the service and improvement of patient outcomes. To lead the development of clinical standards, workforce capability, and service improvement initiatives, supporting the advancement of haemoglobinopathy care locally, regionally, and nationally where appropriate.
Working collaboratively with medical, nursing, allied health professional, community, and wider healthcare teams, the post holder will directly and indirectly influence all aspects of care for children with haemoglobinopathies.
Closing date of applications: 20th October 2026
Interview date: 3rd November 2026
Main duties of the job
Provide specialist assessment, planning, implementation and evaluation of care for children and young people with haemoglobinopathies and their families Act as key point of contact, delivering expert advice, support and education to patients, families and healthcare professionals Manage a specialist caseload autonomously, referrals, undertaking advanced clinical assessment and escalating concerns appropriately Support delivery of annual reviews, investigations, treatment monitoring and multidisciplinary care planning Participate in MDT meetings, clinics and regional haemoglobinopathy networks Lead neonatal haemoglobinopathy screening follow-up service, providing counselling and support to families of affected infants and carriers Communicate complex sensitive information compassionately Support medicines optimisation and treatment adherence Develop and implement evidence-based clinical pathways, guidelines and standards of care Work with multidisciplinary teams and external agencies Contribute to clinical audit, quality improvement, research service development initiatives in line with national standards and best practice Act as a clinical expert, resource for staff within the speciality Provide education, training and support to healthcare professionals, patients, families Maintain professional competence Lead and participate in audit, governance, research, quality improvement Support service redesign, policy development and implementation of national and local guidance
About us
As a trusted organisation at the heart of our communities, we recognise the important role we can play in supporting the public, patients, our own people and local partners in achieving the best of health for the local population and the communities in which they live by providing Exceptional Care Together
Our fundamental Values of Compassion, Openness and Excellence underpin how we intend to work as a Trust and the associated behaviours are becoming embedded in all aspects of how we work.
In return we will offer:
Development opportunities, both professional and leadership development On-going support from recruitment to when you join our team and beyond. Staff benefits including employee assistance programme, discounted gym membership, onsite fitness classes, car schemes Key Facts:
We see on average 4810 OP appointments a day. We are the 4th busiest Trauma & Orthopaedic outpatients department in England - an average of 2077 per week. An average of 1115 patients are seen in A&Es across our network every day - 3rd largest in the country. Our hospitals admit an average of 195 emergency patients daily. Last year we undertook almost 33,700 planned surgical operations in our 57 operating theatres. We are one of only 7 Trusts nationally with more than 50 operating theatres. We carry out more than 140 elective procedures each working day. UHDB is a research active University Hospital with a large and varied portfolio of clinical trials and research opportunities for all staff.
Job description Job responsibilities
Please see attached Job description and Person Specification. To apply please click APPLY FOR THIS JOB this link will take you to the TRAC Recruitment Site. You will need to register if you do not already have an account.
UHDB is committed to fair and transparent recruitment. We welcome authentic applications that reflect your own skills, experience and motivations for the role. While we understand that candidates may use AI tools for grammar, formatting or accessibility purposes, applications that appear to be substantially AIgenerated may be subject to additional review. If this applies to your submission, we will let you know and may ask for clarification. Please ensure your application accurately represents your experience and is written in your own words.
Following the recent update on UK immigration policy for those on a Health and Care Visa or Skilled Worker Visa, please click on the link to check your eligibility before applying for this post as we may be unable to provide sponsorship Impacts of the changes to the UK immigration policy | NHS Employers
Person Specification
Education, Training and Qualifications Requirements Essential
Registered Children's Nurse (RN Child/RSCN) with current NMC registration Evidence of continuing professional development Significant post registration experience and experience at a band 6 post
Desirable
Teaching, mentorship or assessor qualification/experience Working towards higher degree or equivalent experience
Experience & Knowledge Essential
To be able to demonstrate a high level of clinical expertise within paediatric practice Demonstrable experience of working with Patients with Haemoglobinopathies Demonstrable experience of multidisciplinary team working Demonstrable knowledge of clinical governance, safeguarding, risk management and quality improvement
Desirable
Experience of managing a caseload and prioritising complex clinical demands
Skills and Ability Essential
To be able to demonstrate the ability to work autonomously and make complex clinical decisions To be able to demonstrate leadership and role model behaviours To be able to demonstrate the ability to assess risk and take appropriate action To be able to demonstrate effective teaching, coaching and mentorship skills
Desirable
Non-medical prescribing qualification Experience in service redesign and project management
Disclosure and Barring Service Check This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
UK Registration
Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).
Employer details Employer name University Hospitals of Derby and Burton NHS Foundation Trust
Address University Hospitals Of Derby and Burton NHS Foundation Trust
Uttoxeter Road
Derby
DE22 3NE
United Kingdom
Employer's website https://www.uhdb.nhs.uk/ (Opens in a new tab)