About this role
Job summary
1.To act as a specialist in knowledge in MND (motor neurone disease) and MND patients research participation as well as advise on the complex nursing care of MND patients when participating in MND research. To proactively support MND patients and their carers and health colleagues across the South West region to promote inclusion of MND patients into research across the South West region.
2. Proactively lead and develop an MND person-centred research service as part of an MND research nurse network. Working alongside patients and carers as well as stakeholders across the South West region.
3. To ensure that everyone diagnosed with MND in the South West region has access to the support and opportunity to take part in research across the region, working across organisations and linking closely with complex care services and research delivery teams and research leads.
4. To support people with MND to navigate the research process, providing information about current MND research opportunities, identifying research that people living with MND are eligible for, explaining what is involved, and supporting people with their application and ongoing involvement in trials--while ensuring their complex care needs are recognised and supported throughout.
Main duties of the job
Contribute to the progress of MND research and clinical trials, dedicating 100% of efforts to supporting, delivering, and leading initiatives that contribute to breakthroughs in MND care and understanding. Collaborate effectively with the MND Association to support the strategic development and growth of the Research Nurse Network in the South West region. Oversee and support clinical trials across the region and research efforts aimed at improving outcomes for people living with MND, playing a pivotal role in facilitating high-quality research and trial execution Collaborate with multidisciplinary teams across the South West region to ensure studies are conducted smoothly and in full compliance with protocols, legislation, and relevant guidelines. Maintain and manage clinical research databases for MND studies, ensuring accuracy and currency of all research data to support impactful finding. Also ensuring the data is pulled from the differing services across the south west region and these complex data sets are interpreted correctly for the purposes of research.
About us
We are a people business - where every member of staff matters and can make a difference. Patients are at the heart of everything we do. Joining University Hospitals Plymouth NHS Trust means becoming part of a team of dedicated staff, who are committed to leading the way through innovation, clinical excellence and great customer care. The Trust has great opportunities for career development in a highly progressive working environment. We offer all of this in a vibrant, modern city with a historic reputation for adventure. PLEASE NOTE THAT ALL COMMUNICATION WILL BE ELECTRONIC, PLEASE CHECK YOUR EMAIL ACCOUNT REGULARLY. If you have any issues with applying online and need additional support including reasonable adjustments with the application process please contact the recruitment manager for this post who will put you in touch with the recruitment team. We recognise that work life balance is important for our colleagues and so we invite requests from applicants around less than full time/flexible working for our advertised roles. Please contact the recruiting manager to discuss this prior to your application submission. We commit to giving this full consideration in each case. We encourage people from diverse backgrounds to apply for our roles, as diversity strengthens our teams. It is sometimes necessary to close vacancies before the closing date. If you have not heard from us within 4 weeks of the closing date, please assume that you have not been shortlisted.
Job description Job responsibilities
1 To drive collaborative opportunities within the MDT team. Working closely with care coordinators and other MDT members, emphasising seamless coordination, shared goals, and effective communication across departments to enhance complex care delivery in research for MND patients, and ensure alignment with the latest research insights and objectives.
2 To champion the diverse and often complex care needs of people living with MND by working in a manner that facilitates inclusion and collaboration, within and beyond the MND Association.
3 Responsibilities include coordination of care of people living with MND on trials and studies, ensuring effective communication between Care Centre / Networks and research teams, with a strong focus on meeting complex care requirements during research participation.
Serve as an expert resource for patients, caregivers, and healthcare professionals, offering information and support on MND research and clinical trials. Handle additional responsibilities essential to the efficient operation of MND research network and trial initiatives, such as patient meetings to disseminate study findings for example or work within MDT groups to align MND patient research participation in current care pathways. ***Preference will be given to internal Trust staff, as well as Priority and 'At Risk' status including NHS At Risk staff throughout Devon who are able to display recent relevant experience as dictated by the Person Specification.***
Person Specification
Knowledge Essential
oKnowledge of the Research Governance Framework and the International Conference on Harmonisation Good Clinical Practice Guidelines oIn depth knowledge of clinical trials & research methodologies oHigh level of interpersonal and communication skills oIn-depth knowledge of data collection and data entry for clinical trials oGood leadership skills and proven managerial ability oPertinent clinical skills oIT skills including ability to work with databases oAbility to organise and prioritise own workload and work to tight deadlines oAbility to think strategically and make independent decisions oCritical appraisal skills oExtensive experience of clinical research within the NHS setting oBroad and recent clinical experience relevant to the post oLine Management experience within the NHS oProven record of meeting participant recruitment targets
Desirable
Experience of delivering commercial and academic research
Qualifications Essential
oRegistered Nurse or Healthcare Professional, currently registered with UK regulatory body NMC/HCPC oResearch Training (e.g., GCP, degree module, informed consent) oSpecialist knowledge of MND disease and patients oPost graduate /Master's level qualification or equivalent oManagement or Leadership Qualification or equivalent experience
Desirable
Experience of delivering commercial and academic research
Aptitude Essential
oAbility to work autonomously oWillingness to learn, instigate and develop efficient working systems oAbility to work cohesively as a member of a team oWillingness to undertake any necessary training and development to enhance work performance oWillingness and ability to work across sites including community oMeticulous attention to detail
Dispostion Essential
oHigh level of interpersonal and communication skills oFlexible and adaptable oCommitment to openness, honesty and integrity in undertaking the role
Other Essential
oWillingness to travel between sites across the south west region
Disclosure and Barring Service Check This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.
Certificate of Sponsorship Applications from job seekers who require current Skilled worker sponsorship to work in the UK are welcome and will be considered alongside all other applications. For further information visit the UK Visas and Immigration website (Opens in a new tab).
From 6 April 2017, skilled worker applicants, applying for entry clearance into the UK, have had to present a criminal record certificate from each country they have resided continuously or cumulatively for 12 months or more in the past 10 years. Adult dependants (over 18 years old) are also subject to this requirement. Guidance can be found here Criminal records checks for overseas applicants (Opens in a new tab).
UK Registration
Applicants must have current UK professional registration. For further information please see NHS Careers website (opens in a new window).
Employer details Employer name University Hospitals Plymouth NHS Trust
Address University Hospital Plymouth
Derriford Hospital
Plymouth
PL6 8DH
United Kingdom
Employer's website https://www.plymouthhospitals.nhs.uk/ (Opens in a new tab)